Kelly, to quickly answer your question about Georgia, that is not a symptom with which I have heard about extensively, or encountered. Sweet Georgia has her struggles darling, and my heart goes out to you.
Phyrie, I couldn't agree with you more, obviously!
Cas, thanks for your update on Jake! I'm glad you are pleased with the Bush Veterinary Hospital and their treatment of you. Obviously, you are in a different position than Stephanie as you opted for the surgery. I am glad to hear that your experiences with them have been positive, as one would hope when dealing with such a debilitating disease that those who deal with the humans, should be nothing but compassionate.
As far as the information on the Cavalierhealth.org is concerned, I have spoken directly to their editor and they obtain their information directly from a registry. If a particular Vet does not update their own information, it becomes a hunt to find their new location. The gentleman who is the Editor of that site has put a great deal of time and effort into providing the most up to date information available, and of course, there will be glitches. This is not a paying job, I'm sure and he is doing a great service to not only the Cavalier community, but to anyone whose dog suffers from SM/CM.
While I do not know the name of the Vet that was so rude to Stephanie, I can only hope it wasn't the same Vet you have used and this was a one off. As Phyrie said, I also truly hope that they recognize the error of their ways and treat her with the same dignity as they do another who has opted for surgery.
There is no room for a clash or personalities in this type of environment, and personally I would put the blame solely on the facility and not the distressed owner.
As far as "warning people", I am simply telling it like it is! Can you imagine receiving such a rude email, not even a telephone call, but an email saying that she is no longer allowed to call them?! Think about that! It's incredibly unacceptable considering the condition with which we are dealing. It only makes sense that an owner might be agitated, upset even. The staff should be trained in compassion, regardless of the circumstance. I know Stephanie would never be so rude to warrant such horrible treatment, but again, she's not a money maker for the Clinic.
I am very pleased to hear that Jake is doing so well after his surgery and I hope with all my heart that he continues to thrive. I am also pleased that you offer another side to the coin, so to speak and perhaps this might even be a starting point for the Doctor who runs Bush Veterniary Neurology Clinic to reconsider her position, and her approach with those who opt out of surgery.
Dr. Marino at LIVS, the pioneer facility in this type of surgery and treatment was well known for his "bedside" manner with the humans involved, in that it was lacking. However, I've heard that is changing, but he is all about the surgery as he is honing his skills by operating on our beloved companions, as is Dr. Jarboe at BVNS.
For those of us dealing with this horrific affliction, we all know that sinking, sick feeling in the pit of our stomachs when we learn that our beloved dogs have some terrible genetic malformation that causes them tremendous pain and suffering. It hurts us as much as it hurts them, and our only desire is to take away the pain. Any Veterinarian who wishes to practice this kind of medicine must remember that there is a human attached to the "specimen" on their operating table, and behave accordingly. It is not inexpensive to investigate and treat this illness. I'm sure many people are left with the only option of euthanasia.
We are paying their salaries as well as providing them with the "subjects" on which to hone their craft and should be treated as such.
I have encountered only one Doctor at the OVC who made me feel like I was "imposing". I refused to see him after that, although he was Head of Neurology at the time. SM/CM was not his main focus, and unfortunately he passed away at an early age from a Stroke, which was his main focus, ironically. I still would not say an unkind thing about him though as he certainly never treated me with the same disdain that Stephanie has met with the BUSH clinic. She deserves a written apology, and they deserve to be exposed. If one opts out of surgery, don't expect to be treated well from them.
I would love to see proof that Stephanie was SO difficult, she deserved such treatment. It's just not there and for those who wish to treat their dogs first with medication, perhaps this is not the place for them.
Cas, please remember that I am very pleased that Jake is doing so well, and that his life was saved by this Doctor. Colby deserves the same level of care as Jake has received, and I'm sure you would agree with that.